top of page
Writer's pictureAlicia Reagan

Now I Lay Me Down To Sleep

I have a little ritual I seem to go through every night to get my body ready to sleep. If it is a good night, I am able to fall asleep very quickly. If it is a bad night, I tend to doze off quickly but then wake up within the hour with nerve pain and stay awake a lot. Making sure my spasms can get calmed down, using my CBD oil and staying warm under my electric blanket are all ways that help my body calm down so I can rest.

A perfect night…

  1. I transfer good.

  2. My spasticity isn’t bad and that allows me to position my legs and body much quicker because it isn’t fighting me.

  3. I can get on my right hip and rolled to my stomach without triggering a full body spasm.

  4. I enjoy my stomach stretch for about 10 minutes and then roll on my left side, cuddle my pillow and go to sleep!

Those nights only take me about 20 minutes from transfer to sleepy time.

But, most nights just aren’t that perfect..especially in the winter. Tonight’s total time took about 40-45 minutes, and if I would have changed into my pajamas, that would have added another 15 minutes easy the way my legs were fighting me.

It isn’t pretty and takes forever but I am doing it independently!

I have realized being proud of your accomplishments is not the same as having pride. God created the world and every day He would look around and say that “it was good” and He is not prideful.

Even though I truly dislike the “routine” of going to bed and how long everything takes when I…am…SO…tired…I am thankful for the outcome. I am thankful for the ability to do it. I am thankful for my independence still.

Let’s all look at our challenges as opportunities for accomplishments that we can be thankful for.

Here is the video of me going to bed last night!


Comments


bottom of page